Peter J. Pitts, a former FDA associate commissioner, is president of the Center for Medicine in the Public Interest. He writes:
…. But Facebook isn’t the only firm that puts users’ privacy at risk. Some genetic testing companies like Invitae, 23andMe, and AncestryDNA do too — and the consequences of irresponsibly sharing DNA data are far more serious than a social-media data breach.
Lawmakers and regulators ought to demand these genetic-testing companies clearly inform consumers whether, and how, their data will be shared.
But even such disclosures aren’t sufficient. As Pitts notes:
The problem is that the data aren’t permanently “de-identified.” The information can easily be tied back to specific people.
Read more of his opinion piece on Philly.com.